WHERE TO FIND MORE INFORMATION

We have included a range of websites that we hope will help people living with dementia and their families. These include specialist dementia websites, charities, support schemes, NHS and government sites, carers information as well as technology, design and engagement.



Dementia advice and information

Alzheimer’s Society - information, advice and support. See services page for local services in Worthing.

Alzheimer’s Society forums - online discussion forum for any one affected by dementia.

The Butterfly Scheme - used in hospitals to ensure people with dementia are cared for well.

Coastal West Sussex Mind - independent local mental health charity working in West Sussex.

The Dementia Centre (dsdc) - at Stirling University is an international centre dedicated to improving the lives of people with dementia. Packed with information.

Dementia Friends - for people wanting to understand a bit more about dementia.

Dementia UK - Admiral Nurses who provide support to families affected by dementia.

Dementia Action Alliance - a movement with one simple aim: to bring about a society-wide response to dementia. Encouraging and supporting communities to take practical actions to enable people to live well with dementia and reduce the risk of costly crisis intervention.

Dementia Without Walls - was a programme initiated by the Joseph Rowntree Foundation to amplify the voices of people with dementia. The website is their showcase and the programme continues through partnership working and through DEEP, the UK Network of Dementia Voices.

The Lewy Body Society - more about dementia with Lewy Bodies.

Parkinson's Society - more on Parkinson's with dementia.

Rare Dementia Support - including frontotemporal dementia.

Young Dementia UK - for people affected by young onset dementia.


Connect with others

Twitter

@DementiaUK

@DementiaFriends

@alzheimerssoc

@YoungDementiaUK


Facebook

Dementia UK

Dementia Friends

Alzheimers Society Uk

Young Dementia UK

Facebook.com group for Posterior Cortical Atrophy awareness. The group is closed but you can ask to join.


Carers’ advice and information

Carers Support West Sussex - providing support to family and friend carers in West Sussex.

The Carers Trust - support for carers.

Carers UK - provide support and information for carers.

Continence Foundation - treatment, prevention, causes, types and living with continence.

Crossroads Care West Sussex - supporting carers to have a break by providing care.

Dementia Adventure - is a community interest company offering holiday breaks for people with dementia and their carers.

Dementia Challengers - is a website written by a carer of someone with dementia and supported by the experience and expertise of other carers.

Social Care Institute of Excellence – SCIE. Information, guidance, resources and accredited training for anyone supporting people with dementia.

View SCIE’s dementia videos on Social Care TV.

Shared Lives - supportive respite to give carers day/overnight breaks

Social Care and Health - West Sussex County Council.

TIDE - (together in dementia everyday), a network for carers to support by influence and experience.


Ideas for home and living

AT Dementia - provides information on assistive technology that can help people with dementia live more independently.

Care Charts - used in many care homes and by home care agencies, record a person’s likes and dislikes.

Designability - is a national charity joining expertise and knowledge to enhance people’s lives through the design of easy-to-use products.

Javoo is a free iphone app for families of people with dementia, a private social network to keep everyone in touch.

Jointly - is an app that makes caring for someone a little easier and more organised.

Red Assure Independent Living - based in Worthing, provides equipment, living aids and technology to support independence.

Unforgettable.org - probably the worlds best online shop for products for people with dementia and memory loss. They work with the Alzheimers Society and make it easier for carers to find products that can help them at home.


General advice and information

Action on Elder Abuse - this can happen anywhere, in a persons home, care home or hospital.

Age UK - advice, information and local services in some areas.

Care Quality Commission - the independent regulator of health and social care services.

Carewise - a financial advice scheme set up by West Sussex County Council providing an approved panel of qualified independent financial specialists.

Citizens Advice - lots of free, confidential and impartial advice and links to local Citizens Advice branches

Continence Foundation - treatment, prevention, causes, types and living with continence.

Cruse Bereavement Care - somewhere to turn when someone dies.

Department for Work and Pensions - government website with details of benefits and pensions and how to claim them.

DisabledGo - maximizing independence and choice across the UK

Disabled Persons Railcard

Disability Benefits Helpline - information and advice about Attendance Allowance, Disability Living Allowance and Personal Independence Payment.

Driver and Vehicle Licensing Agency (DVLA), - for driving licences and vehicle registrations.

Dying Matters - encouraging open talk about death, dying and bereavement.

Elderly Care - is a free website created by the consumer association Which? The website provides independent information on all aspects of care for older people. There is a carers hub, legal and financial advice and a care services directory.

Healthwatch - an independent organisation for feedback on health and care in West Sussex.

Mind - mental health charity that publishes information on all aspects of mental health.

The Money Advice Service - free and impartial advice set up by the government.

NHS 111 service, - information on a wide range of health topics. Telephone service gives access to round-the-clock clinical information, confidential advice and reassurance.

NHS Choices - information about dementia.

NHS Patient Advice and Liaison Service

Occupational Therapy  - Therapy Directory aims to enhance the daily lives of those with mental, physical and developmental disabilities.

Office of the Public Guardian and Court of Protection - provides information and advice on powers of attorney and deputyship.

Relative Matters - based in Worthing, are independent care consultants, social workers and SOLLA care advisors, offering a range of care solutions.

Relatives and Residents Association - is a charity supporting people in care homes, their relatives and friends.

Social Care and Health - West Sussex County Council.

Society of Later Life Advisors - (SOLLA), offer local specialist advisors for care and financial advice.

Solicitors for the Elderly - independent, national organization of lawyers providing specialist advice for vulnerable older people and their families.

Turn2Us - help if you are struggling with financial hardship.

UK Homecare Association Ltd - the national association for organisations who provide social care and nursing services to people in their own homes.

West Sussex Care Guide - plus supporting documents can be downloaded from the westsussex.gov.uk

West Sussex Connect to Support - online resource with information about care and support across West Sussex


Activities and engagement

BBC Archive - Take a trip through memory lane with the BBC's Archive Collections, broadcasts, documentaries, radio and TV programmes from the past.

Adur and Worthing Wellbeing - local wellbeing services and information.

Arts4Dementia - empowering people with memory loss through artistic stimulation.

Engage and Create - a social enterprise dedicated to improving the quality of life for people living with dementia and those that care for them.

Sporting Network - charity supporting older people by engaging them with memories of sporting moments and their passion for sport.

West Sussex Library Service - offer a professionally endorsed booklist for dementia, a Reminiscence Collection and a Home Library Direct Service.

Music Mirrors - enabling people to create a brief life story, in their own words, with sounds and recordings embedded.

Read more on our website or ring 01903 327 327